Zomwe muyenera kudziwa zokhudza thanzi la mwana wanu

Kukhala ndi JIA kumatha kuonjezera chiopsezo cha mwana wanu cha kuvutika maganizo ndi nkhawa.Izi ndi momwe mungawathandizire kupirira.
Kukula kumatha kukhala kovutirapo, koma mukawonjezera zinthu monga matenda a nyamakazi achichepere (JIA), zimatha kupanga ubwana ndi unyamata kukhala zovuta kwambiri.Kupweteka kwapakhosi kumatha kusokoneza moyo wa mwana wanu watsiku ndi tsiku, zomwe sizimayambitsa zovuta zakuthupi zokha komanso mavuto amalingaliro monga kupsinjika maganizo kapena nkhawa.Tinakambirana ndi akatswiri za njira zosiyanasiyana zimene JIA imakhudzira thanzi la mwana komanso mmene mungathandizire mwana wanu kupirira komanso kukula.
Matenda a maganizo monga kuvutika maganizo ndi nkhawa ndi ofala kwambiri kwa ana omwe ali ndi JIA, anatero Diane Brown, MD, dokotala wa rheumatologist ku Los Angeles Children's Hospital."COVID isanachitike, kuyerekeza kwabwino kunali kuti 10 mpaka 25 peresenti ya ana omwe ali ndi nyamakazi amakhala ndi zizindikiro zazikulu zakukhumudwa kapena nkhawa," adatero."Ndikuganiza kuti ndi wamtali tsopano."Ndicho chifukwa chake ndikofunikira kwambiri kudziwa zizindikiro za kuvutika maganizo ndi nkhawa komanso momwe mungathandizire mwana wanu kuti akhale ndi maganizo abwino.
Dr. Will Fry, katswiri wa zamaganizo a ana pachipatala cha Johns Hopkins Children's Hospital Chronic Pain Clinic ku St. Petersburg, Florida, ananena kuti JIA imakhudza thanzi la maganizo m'njira zambiri."Chachikulu mwina ndi ululu wokhudzana ndi JIA," adatero."Kuwonongeka kwa mafupa kungapangitsenso kuti ana azichita zochepa komanso kukhumudwa chifukwa cholephera kuchita zinthu."anthu omwe ali ndi ululu wosatha.Dr. Brown anati: “Kupweteka kunali chizindikiro champhamvu kwambiri cha kuvutika maganizo kwa ana amene ali ndi nyamakazi.
Kusadziŵika bwino kokhudzana ndi kukhala ndi matenda aakulu kungakhale cholemetsa chachikulu kwa ana ndi achinyamata."Kukayikakayika za zizindikiro zomwe adzakhala nazo komanso momwe moyo wawo ungakhalire kungapangitse ana kukhala ovutika maganizo kapena opanda chiyembekezo," adatero Fry.Njira ya JIA yokha imatha kukhala yosadziwikiratu, zomwe zimatsogolera kumalingaliro awa."Odwala amakhala ndi masiku abwino komanso oyipa ndipo sakutsimikiza ngati angawoneke bwino kuti akayezetse mayeso ofunikira kapena ulendo wopita ku Disneyland chifukwa nyamakazi yawo imatha kubuka - ndi gawo la nkhawa.zoyambitsa,” anawonjezera Dr. Brown.
Matenda osatha amatha kupangitsa aliyense kudzimva kuti ali yekhayekha, Fry akuti, koma zimatha kukhala zovuta makamaka kwa ana ndi achinyamata pamlingo wamoyo wawo pomwe mwachibadwa amafuna kucheza ndikugwirizana ndi anzawo.Vuto la JIA likhoza kuwonjezera chipongwe.“Kaya mukumanga msasa ndi banja lanu kapena kusewera mpira ndi anzanu, kulephera kuchita maseŵera olimbitsa thupi kungakhale kokhumudwitsa,” akutero Dr."Kumwa mankhwala mukadali wachinyamata mukangofuna kukhala ngati wina aliyense kungakhale vuto lina.".
Chowonjezera kulimbana kwachitukukochi ndi chomvetsa chisoni chakuti anthu ambiri samamvetsetsa momwe zimakhalira kukhala ndi JIA."Zimakhala zovuta kwambiri ngati matenda anu nthawi zambiri sawoneka kwa anthu ena ndipo samachoka - pamene anzanu alibe ochita zisudzo oti asayine ndipo sizikhala bwino ngati ululu wochira.Pezani chifundo ndi chithandizo.zomwe zimakhala zovuta kuti anzanu komanso achibale anu amvetse,” anatero Dr. Brown.Mwachitsanzo, mphunzitsi sangamvetse zofooka za wophunzira mu kalasi ya PE, kapena akhoza kukhala ndi vuto lomaliza mayeso pamene chala chikupweteka chifukwa cha nyamakazi.
Zinthu zonsezi zikaganiziridwa, sizodabwitsa kuti ana omwe ali ndi JIA amatha kukumana ndi mavuto amalingaliro monga kupsinjika maganizo kapena nkhawa.Koma mungadziwe bwanji ngati mwana wanu akukumana ndi mavuto apadera ndipo akufunika thandizo lina?Fry anati: “Yang’anani kuipidwa, kukhudzidwa ndi kukanidwa, ana osayesanso kucheza ndi mabwenzi kapena kuchita zinthu zomwe poyamba ankafuna kuchita.Kukhala wopanda chiyembekezo, kukhumudwa kosalekeza, komanso malingaliro aliwonse kapena nkhani zodzivulaza zomwe mwana wanu amafunikira chithandizo chanthawi yomweyo.
Kupsinjika maganizo ndi nkhawa zingasonyezenso ngati zizindikiro zakuthupi zomwe sizimawonekera mosavuta mwa ana ndi achinyamata."Kuwonjezeka kwa madandaulo a zizindikiro zosadziwika bwino komanso zosakanikirana, monga kupweteka kwa mutu, kunyowa, kupweteka pachifuwa, kusanza, ndi zina zotero, kungakhalenso chizindikiro ngati matenda ena kapena kuvulala kumachotsedwa," adatero Dr. Brown.Kuonjezera apo, kusintha kwakukulu kulikonse muzochita zogona kapena chilakolako, makamaka kunenepa kapena kutaya thupi, kungasonyezenso kuvutika maganizo kapena nkhawa ndipo ziyenera kusonyeza kuti mwana wanu akufunikira thandizo, akutero.
Monga kholo kapena wosamalira, zingakhale zokhumudwitsa kuona mwana wanu akuvutikira ndipo simungadziwe poyambira kuti mumuthandize.Fry anati: “Amodzi mwa malo abwino kwambiri oyambira ndi m’nyumba mwanu komanso paubwenzi wanu ndi ana anu."Zonse zimayamba ndikutha kulankhula ndi ana anu, kutsimikizira momwe akumvera komanso kukhala nawo pa chilichonse chomwe akukumana nacho," adatero.Kukambitsirana momasuka ndi moona mtima (ngakhale koyenera zaka) za matenda awo ndi chithandizo chawo kungathandizenso mwana wanu kumva kuti akuthandizidwa, malinga ndi Arthritis Foundation.
Kuthandizira thanzi la mwana wanu kumatanthauzanso kumulimbikitsa kutenga nawo mbali pazokonda komanso zosangalatsa.Mungafunike kupanga luso kuti muwathandize kupeza njira zosinthira zochita kuti apitilize kutenga nawo mbali ngakhale ali ndi zizindikiro za JIA, Fry akutero.Izi ndi zofunika kwambiri chifukwa zimathandiza kukhala ndi "mphamvu" mwa ana, kapena chidaliro chawo kuti akhoza kupambana pa chinthu chomwe chingathandize kuthana ndi kuvutika maganizo, inatero Arthritis Foundation."Ana amakhala osangalala kwambiri akamachita zinazake," adatero Fry."Chitani zosangalatsa kapena kupeza njira yomwe ana anganyadire nayo yomwe ingathandize kuthetsa chipale chofewa."
Mawu akuti chithandizo akadali ndi tsankho, koma ana ambiri omwe ali ndi JIA atha kupindula ndi chithandizo chowonjezera kuchokera kwa akatswiri amisala monga katswiri wa zamaganizo.Panthawi ya chithandizo, Fry akuti, mwana wanu atha kugawana nawo kulimbana kwawo ndi JIA, kupeza chithandizo, ndikuphunzira njira zothandiza zamoyo zonse.Kumbukirani, chithandizo sichiri chothetsera mavuto aakulu a maganizo - chimathandiza ana ambiri, ngakhale ngati njira yodzitetezera.“Odwala athu ambiri angapindule akamalankhula za matenda awo ndi munthu amene waphunzitsidwa kuthandiza ana amene ali ndi matenda aakulu,” anatero Dr. Brown.
Kuzindikira kwa JIA kumatha kusintha dziko la mwana wanu ndikupangitsa kuti azikhala osungulumwa, koma pali njira zambiri zoperekera chithandizo chamalingaliro kuti apitilize kukula ndikuchita bwino m'moyo.Nthawi zambiri njira zophatikizira zimafunikira kuti muthandizire bwino mwana wanu, kaya ndikuthandiza mwana kuti azilumikizana ndi abwenzi kapena zokonda, kapena kulumikizana ndi dokotala.“Zindikirani kuti kufunafuna chithandizo ndi mavuto a m’maganizo kungakhale nyonga, osati kufooka,” Dr. Brown akutikumbutsa motero."Kuchitapo kanthu mwamsanga kungateteze mavuto aakulu."